Month: March 2019

Black wheelchair with a red colour frame

I Fake my Disability??

There is a culture in today’s world that the majority of disabled people are faking it!  Contrary to belief and we know who started the rumour, (yes the government, so they can condone their actions regarding austerity, ATOS, PIP assessments, UC etc all of which were designed to fail, except austerity of course).  Fakers are few and far between!  Disabled parking bay abusers are a much more common daily occurrence but that doesn’t cost the government money, so of no interest to change or enforce.

The media have contributed to this culture by seemingly creating two types of disabled people: inspirational/sporting “look what they can do”, or lying scroungers.  So if I can’t partake in sport/Olympics and represent my country, I must be a faker?  This is the problem!  What people are forgetting is that our Olympians are sponsored by many different companies, their equipment, (wheelchairs, artificial limbs etc) cost thousands and thousands of pounds to help them achieve their goals.  This IS why they can do what they do, plus the years and years of training they do!!  If you are Joe Bloggs, believe me, you are given what you’re given and made feel you should be grateful for that much.  My husband who was also born with his disability wears an artificial leg, he went to his GP to ask him to sign the form necessary to apply for a freedom pass, the GP responded by saying “how can you class yourself disabled when we have Olympians with artificial limbs”?  Needless to say, he didn’t sign the form!!!!  So when up against attitudes like that, why would anyone want to FAKE being disabled?

Able-bodied people will never & can never understand why we (disable people) NEED the things we fight for, like, accessibility, adapted housing, barriers removed, attitudes changed.  How can they?  They don’t have to live the life we live.  They are blessed with being able to take most things we HAVE to fight for, for granted!!  For example, let’s take something simple:  Busses:  Disabled people fought for many many years to get the wheelchair space implemented, now everyone wants to use it.  Some parents with buggies will not move from that space if a wheelchair user needs it, believing it is their RIGHT to stay put!!  Well let’s see now, the sign on the busses says what exactly:

Salesman selling wheelchair to abled explaining great parking and sympathy

“Should a wheelchair user wish to use this space, please move to another part of the bus”.  So when I am left again feeling downtrodden, embarrassed, a burden, angry, wet & cold, yes I fake my disability.  So, when it’s obviously clear, you are asked to move, this self-righteous attitude some of you have adopted is quite obnoxious!  At the end of the day, you CAN take your child out of the buggy, fold said buggy and move, I CAN’T get out of my wheelchair and sit on a seat and fold my chair, no matter how much I would love to be able to do that.

The hate & personal attacks shown to disabled people is fed by the fact you are made to believe we are receiving special treatment or an added extra.  This then makes you believe we must be faking it to get said treatment.  So…………

When I’m having to have another painful procedure to unblock my catheter that’s caused another urinary infection, or radio-frequency facet joint injections into my spine to try to alleviate my pain, I mean, there’s no guarantee they are going to work!

I am suffering the terrible side effects of the medication I have to take just to keep me alive.

Losing friends because they have no idea what it is like to live my life and have no patience.

Stuck in bed again because I’m in too much pain to be able to move.

Losing the career I love because my employer sacked me due to the amount of sick time I have to take.

The list goes on and on and on!!!

Just because I have a smile on my face, doesn’t mean I’m ok!!

All the stuff disabled people fight for can take many years to get changed or implemented and most are not even achieved.  All we want is to have the same quality of life most able-bodied people take for granted.  The trouble is, the things we fight for often don’t even help as disabled people are not listened to so the entity making the changes rarely ever get it right.  You believe it is special treatment and extra because something has to be an add-on feature because, in the structure of life, disabled people are forgotten about.

YES, I FAKE MY DISABILITY!!!!!!!!

Sample image of the disabled blue badge

Disability Blue Badge is Changing!

The blue badge disabled parking scheme is undergoing its biggest shake-up since it was introduced in 1970.  Previously, local authorities could not exclude those with hidden disabilities, but granting permission was very much open to interpretation. The changes now give councils clearer guidelines.  Last month, the Department for Transport (DfT) confirmed that from 2019, people with hidden disabilities will be granted access to the scheme too.  Read the full story here.

According to the Citizen Advice Bureaux:  

If you’re disabled or have a health condition that affects your mobility, you can apply for a Blue Badge.  You can also apply for a badge if you care for a child with a health condition. 

Who can get a Blue Badge 

You’re automatically eligible for a Blue Badge if you:

  • Are registered as blind
  • Get the higher rate of the mobility component of Disability Living Allowance (DLA)
  • In receipt of Personal Independence Payment (PIP). Scored 8 points or more in the ‘moving around’ area of your assessment. Check your decision letter if you’re not sure
  • Receive War Pensioners’ Mobility Supplement 
  • Received a lump sum payment as part of the Armed Forces Compensation Scheme (tariffs 1 to 8). Been certified as having a permanent and substantial disability
If you’re not automatically eligible

It’s worth applying as you might still be able to get a badge. You’ll have to fill in an extra part of the application to show why you need one. 

You should do this if:
  • Problems walking that is permanent, or that your doctor says are likely to last at least a year
  • You can’t use your arms
  • You’re applying on behalf of a child aged over 2 who has problems walking. A child under 3 who needs to be close to a vehicle because of a health condition

Source:  Citizen Advice Bureaux 

This raises a few questions:

  1. Will the councils, private car parks, hospitals, high streets etc. increase the amount of disabled parking bays to accommodate all the new users?
  2. Will councils tackle Blue Badge abuse that happens, more effectively?
  3. If the blue badge is now open to people with all disabilities, how will this affect people with mobility conditions and people who need the extra space for wheelchairs?

We all know how difficult it is to find an empty disabled parking bay as it is.  Once this change takes effect next year, can you imagine just how much harder this will become?  I always believed blue badges were for people who had mobility disabilities.  The wider bays were/are for people who need the extra space to be able to get into and out of their cars, for wheelchairs, straightening callipers or something else.  Am I right to assume that everybody with a disability NEEDS extra space around their car?  So, if not, why not introduce more disabled bays the same width as other bays, for those that don’t need the extra space?

Apply for a blue badge.

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Inside an aeroplane toilet to show how small they are.

Stressed & Embarrassed by Taking A Pee With The Door Open & Staff Loitering!

The Degradation Of Peeing With The Door Open & Staff Loitering! – Is this something you would tolerate flying on your hols? I guess not but that is exactly what disabled people are expected to do! That is what I had to do! Oh, and that is IF you can use the toilet in the first place!

Airline Failures

Flying & disability are not two words airlines want to put together!

I’m due to travel to Las Vegas later in the year and one of my big fears among many is what if I can’t use the toilet!  My flight is 11 hours long, I can’t hold myself all that time!  I shouldn’t be expected to either but that’s exactly what airlines are expecting us to do. Anyone who has flown will know just how small the toilets are on an aeroplane. How on earth is any wheelchair user expected to use one is beyond me. More importantly, why are airlines still getting away with this blatant discrimination??

While going through my Twitter, I came across another lady who is also flying in the near future and was asking if anyone knew how she could find the dimensions of the toilet on the type of plane she will be flying on.  This made me realise I wasn’t the only one needing this kind of info. So, I took this opportunity to find out how one would go about searching the dimensions of an aeroplane’s toilet.

I got in touch with BA who couldn’t help, I contacted other airlines but no luck there either. I even contacted several companies including Boeing themselves who I might add never responded.

It Turns out, airlines don’t actually hold this information. I’m left hoping that a nice member of the cabin crew will take the dimensions and pass them on.  So far, trying to research this information has been practically impossible.

Stressed & Embarrassed by Taking A Pee With The Door Open & Staff Loitering! - Aeroplane with an image of what a standard toilet looks like inside the plane.

Availability

Why is this type of information so hard to source? Why can’t airlines have this info available from their accessibility team? Because they don’t want disabled people flying! That’s why! The way airlines treat disabled customers and their wheelchairs/aids are beyond incompetent and disgusting!!

  • This information should be readily available.
  • it should NOT be this difficult to obtain this kind of information directly from the airlines.
  • Information of this nature should be available from their accessibility team.

Now we all understand the business concept of making money but when you are clearly making changes that exclude sections of society because of said business concept, surely this can be deemed as discrimination?  So why, are these airlines allowed to not only continue this behaviour but actually make the situation worse? 

Airlines are doing all they can to discourage disabled people from flying!!!  Oh and it’s not just disabled people, large people also are affected.  People who may need 2 seats instead of 1, (we know how small the seats are too) who also wouldn’t be able to use small toilets.  So why is there not more public outrage??  I’m truly baffled!!

Discrimination

As I’m typing up this blog, the lady on Twitter has just got back to me saying she went into the airport and spoke with the airline in person and got the information she needed.  Why should she have to do that?  Couldn’t the airline have given her the info over email/telephone when she/I first asked? An able-bodied flyer wouldn’t have had to do this!!

Equality Act 2010 Says
Equality Act 2010 logo

What is discrimination arising from disability? (new)

Discrimination arising from disability occurs when a disabled person is treated unfavourably because of something connected with their disability and the unfavourable treatment cannot be justified.

Discrimination arising from disability is different from direct discrimination. Direct discrimination occurs when a service provider treats someone less favourably because of the disability itself. In the case of discrimination arising from disability, the question is whether the disabled person has in practice been treated unfavourably because of something connected with their disability.” Source: Equality Act 2010

So what should have been a simple task, cost that lady time, energy, petrol/travel expenses and frustration! Being disabled is a full-time job, believe me! Disabled people are faced with tasks of this nature DAILY and several times a day. (No wonder I’m always bloody tired!)

The most frustrating aspect of this is, that the majority of the research we have to do is unnecessary. If companies were more inclusive, we wouldn’t have to fight for basic information!

Links

Boeing

Equality Act 2010

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